It has been a struggle since my recent hospital stay. I must admit, that if there was not so much going on with my daughters wedding, I would probably beg to be readmitted! I never thought I would actually say that in a million years! But there simply is no improvement in my condition.
The issue that I was admitted for has continued to be a problem. I have completed the antibiotics that I was given and continue to be plagued with these issues. The nausea has also been extreme during this time; however, I finally received my Domperidone from the UK, so I am hopeful that will subside once I get back on a regular dosage of the medication.
I have only been able to complete one can of my nutrition since coming home. This is actually a new type of nutrition again. This type is already processed so all my body has to do is absorb it. Whereas with the other formulas, my body had to break the nutrition down. Apparently my small bowel is unable to do that anymore. I was released on one can of this new food per night. That is only 350 calories per day.
Next week I am actually going to go to a Chinese MD to try Acupuncture. Many people who have Fibromyalgia and various gastric issues have used acupuncture and have found success. I figure I have nothing to loose by giving it a try. I wanted to go to a Chinese MD since they are the people that are the experts. The doctor is located in Mason, OH.
I am going to see my GI doctor on Thursday. Again, my concern is the hydration and my nutrition. If I am not able to get it through my J-tube now because of the small bowel not absorbing it, how do they expect me to get it? I think back to this time last year and things are worse, much worse. We have even considered going back to The Cleveland Clinic because my nutritionist/metabolic specialist, Dr. Susan Williams, moved there last year and I loved all the doctors there. The problem was the commute. But I would be willing to stay there as long as I needed to be there if they could figure something out.
So many questions.......
I want to thank all of you for your emails, texts and phone messages. Even though I many not reply right away, I do appreciate each and every one of them!
God Bless you!